Discussion about this post

User's avatar
JJ's avatar

I am so sorry for your situation.

This post made me have a little anxiety.

We were part of Medi share.

I have Puetz Jegher so when my husband and I signed up I marked that I had a preexisting condition and I called and talked to them about it. They said we were good to go. In 2017 you could talk to a real person.

Then I started having problems. I ended up in the hospital with an intussusception and needed emergency surgery. I also had complications with a procedure and had lost a lot of blood. I was hospitalized for 16 days.

Medi share was paying our bills and we were excited that it was working.

Well, one day we noticed on their website that they had requested every dollar that they had paid to be returned by the hospital that received the payment. I had no clue that could happen. I had been admitted to two different hospitals that year and one of them had already returned the money. The other hospital had not and my husband got on the phone and told the hospital “Do not return the money!” They listened and did not return it to Medi share. So we owed a bunch of money to the one hospital and that hospital would not negotiate anything. We had to set up payments to pay that hospital.

When we questioned Medi share they said that Puetz Jeghers syndrome is a genetic disease and they don’t cover genetic diseases!!!!!!!! Or maybe they said it was inherited and they don’t cover inherited diseases. It was one of those. It was so crazy and stressful. I lost all respect for that company.

And why wouldn’t they have looked at my diagnosis and explained that before we signed up. Something is really wrong with Medi share!

This is the first time to share this story so publicly but when I saw this post I knew I had to.

I am praying for you and your family.

Allison Griffin's avatar

A social worker in the NICU told us about the Katie Beckett / TEFRA waiver that allows children with severe health conditions or disabilities to receive Medicaid even if their parents make too much money. It is retroactive. It does not dictate what care you can / cannot pursue, nor does it mandate any cupcakes / jabberwockys. I highly recommend looking into it.

30 more comments...

No posts

Ready for more?